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Christine Update – Adjusting To Life At Home – 9/12/17

We are slowly adjusting to life back at home. You’d think that being free at last from the hospital, you’d want to be out and about every day! Getting Tintin to leave the house takes a little bit of encouragement but she manages fine as long as she’s with somebody she knows and trusts. This is because of the short-term memory issues that I think I mentioned in the last update. I’m not sure what it feels like, but I imagine it’s something like what Dory goes through, and you forget what you were supposed to be doing. I called and spoke with Dr. Rosenberg the other day, about having him be our neurologist to follow-up with, and he delightfully said yes, and he mentioned that the memory thing can sometimes take up to a year to heal.

She will be doing her speech and occupational therapy here by the house at Casa Colina in Azusa, and the speech is the one she will probably dread the most lol! It’s like going to school again for her, and she’s not the best at math or spelling as it is, so I hope they don’t think it has to do with the illness! Nope. That’s just my Tintin! She makes up for it by being an awesome loving person.

As you may have seen on social media, she went to the fair twice this past weekend, and she walked at least 2 miles easily each night. She keeps eyeing the electric carts that you can rent, but I encouraged her to take breaks as needed and just people watch. I said maybe if we go for an entire day or something, then we can rent one. She got to witness Alina see her photos and artwork for the first time, on display at the fair, which was all because Tintin had them take pics and do colorings so that she could submit them to the fair. Both Ray and Alina got a few first place and second place ribbons! Thanks auntie Tintin!

She is now caught up on Game of Thrones. Actually, she is catching up on quite a bit of her tv shows that we’ve been saving on our Tivo for her. Shocker that this girl remembered how to operate the tv remote, but can’t remember what drawers to put her clothes away in! Sounds just like the girl I know, mmhmm. Maybe I can slip the occupational therapist some money on the side to teach her some of these cleaning routines and organizational skills, lol. Tintin 2.0 coming soon!

Sorry if she hasn’t been responding to your texts or phone calls. She’s been avoiding her phone like the plague. I think she is still very shy, or insecure and doesn’t know what to say to most of you. Don’t take it personal though, please. Here’s a perfect example of what I mean. Nini was coming over today to pick her up and go run a few errands with her, just to get her out of the house for a bit, and before Nini arrived, Tin asked me “when I go run errands with Nini, do I just wait in the car or do I go with her?”. She’s so innocent and sincere about it, and it makes you wanna cry. It’s like I want to protect her from everything out there, but I want her to build up her confidence of going outside and seeing things, and dealing with the everyday sights and sounds that are currently overstimulating her mind. I see it at the fair when we walk through the carnival area and there’s music pumping from one direction, simultaneously while a ride is going and you hear 5th grade girls screaming at the top of their lungs, and then there’s the carnies shouting at you to play their game. You’re being bombarded from every direction! I’m hypersensitive to all these things now because I’ve got my head on a swivel for any and everything that may bother her. She complains that it’s too loud or too much, but not sure if she is just unable to concentrate cause of the clashing of all the sounds. It is quite a chaotic setting and probably isn’t the best place to take her in the fair, but she gets through it and I firmly believe it’s helping her get stronger in her recovery. She has her moments of confidence and her old self though, as in stuff like her pic she posted on Instagram, famous random hashtags and all! So you see…she’s working on it!

If you want to come by and visit, just text me or msg me on Facebook. We’re usually here unless we have appointments or something. I work from home, so that helps tremendously. I’m sure she’d love some company just to sit and watch TV with. She probably won’t have much to say in terms of a conversation, but if you’re cool with that, then come and kick it! I think small intimate visits work better for her, because as we’ve seen with big group gatherings, she tends to just want to go hide and lay down from the overstimulation. We just got to give her time, that’s all. Okay guys, thanks for still keeping her in your hearts and mind. We’re far from out of the woods, but we are on the trail to recovery!

Christine Update – 8/11/17

Hey everyone, just a quick update on Tintin. She's settling in at the new hospital, and wow is Huntington impressive! She had a lumbar puncture yesterday morning, and that went without a hitch. She hasn't had any swallowing, heart stoppages or respiratory issues either, since the day before she left Inter-Community. Her brain seems to be healing the involuntary action stuff that we take for granted! She's finally sleeping again, and Lord knows the brain needs that. She is mostly coherent in terms of looking and following us around the room, and she is trying real hard to find her words. You can see the struggle in her facial expressions, which she has many. The most popular seems to be the "wtf" face, which I'm sure is due to me talking too much. The neurologist started to ramp up the Solumedrol steroids in hopes that there will be more improvement. In 5 days he will see if they will advance to an IVIG treatment, which basically inserts another person's perfectly working immune system into her body through a blood transfusion, that will teach hers to work properly again. Ever since I posted up her story the other day, I've gotten so many responses, and well wishes, and personal msg's, and I'm just overjoyed by all of it. I even got a special msg from a friend of an old family friend, Melissa Scheliga, who my Mom used to babysit when we were kids, and this friend of hers named Carla Cassia, went through this same ordeal back in 2009. She was diagnosed with Auto-immune Encephalitis; Cause unknown. It was so reassuring to know that this is something that you can recover from, albeit after some time, but mainly I wanted to know if Tintin could hear us even though she can't communicate, and she said most definitely. Carla said she could hear and understand everything while she was coherent, but she was unable to talk and find the words she needed to say. That was all I needed to know, so that way we can at least let her know that we know she can hear us. Once we told her that, it's as if she became more calm and patient with us. No resistance or struggles, and also less shaking episodes. This is all progress, and we're happy. She was even smiling for the selfies which I posted for you all to see! I know it's a far comparison from how you're used to seeing her, but it's 100x better than where she's been for the past few weeks. We'll take it! Right now, her food is getting cold, but she's knocked out asleep, and there'll always be more food! Sleep is nature's best method for healing the brain! Keep her in your thoughts, and prayers. Appreciate you all. 🙌🏽🙏🏽❤️

RedefineHipHop: James Sumbi of Freestyle Fellowship and All In All

 

So today I spent a few hours watching my uncle James’ interview/documentary/revelation…whatever you interpret it as, on his story of the West Coast Hip-Hop Scene in the mid-80s and early 90s.  I hardly get to see my uncle.  Maybe about once a year we get to chop it up at family gatherings, and that’s about it, and while visiting with him at my aunt’s birthday party last weekend, he told me about this video doc he did for Fifth Element.  Now, you might be asking yourself, J. Sumbi’s my uncle?  How’s that?  Well obviously, we’re not blood family, but by marriage.  My Dad’s cousin, my aunt Crissy, married him.  As a kid, I’ve always known him as uncle James, but in high school, when I told him that my friends and I we’re starting to get into deejaying, he said he was a DJ too.  I told him we were spinning mostly with CDs but our partner had a set of Technics that we were getting the hang of.  He said he had a set of 1200’s with flight cases, that he wasn’t really using at the time, and offered them up to me for $300 for the pair, cases included.  I was shocked, but I didn’t ask twice!  My homie Alphonso fronted the cash, and the tables found a new life with me, and I still use them til’ this day.  These were the same tables he used while being The Nonce’s DJ, so I’m honored to have a set of tables that have some personal history to them.  Once I became a student of Hip-Hop, I then realized that he contributed a great deal in the early days of Hip-Hop!

Anyways, this post isn’t about me, it’s about him.  If you’re a fan of Hip-Hop, or if you’re a fan of documentaries, then you’ll want to sit back and watch all 8 of these videos, produced by Fifth Element.  There’s some awesome stories in each one.  From how he got into making his first beats with 4-track recorders, to forming Freestyle Fellowship, which no doubt inspired other powerhouse collaborative groups like Jurassic 5, Wu-Tang, and so on.  My uncle’s got a story to tell, and if it wasn’t for him, I’d be some whack ass CD DJ, or worse…an electronica one!  Just kidding, but those dudes shouldn’t be called DJ’s.  They need another name, like Fist Pumpers, or Party Rockers, or some shit.  Non-beat-juggling, no-scratch-skills-having, setting-up-your-turntables-the-normal-way-instead-of-battle-style whack fools!  That’s what’s up.

Peep videos  2-8 after the jump Continue reading